Public preferences for involvement in the governance of health data

doi:10.1093/eurpub/ckaa165.801

Utilize este identificador para referenciar este registo: https://hdl.handle.net/1822/68120

Título:	Public preferences for involvement in the governance of health data
Autor(es):	De Freitas, Cláudia Amorim, Mariana Teles, Elisa Leão Maia, Tiago Machado, Helena Silva, Susana
Palavras-chave:	Consultation Exercise Caregivers Decision making Hospitals University Public health medicine
Data:	2020
Editora:	Oxford University Press
Revista:	European Journal of Public Health
Citação:	De Freitas, C., Amorim, M., Leão Teles, E., Machado, H. & Silva, S. (2020). Public preferences for involvement in the governance of health data. European Journal of Public Health, 30(Issue Supplement_5).
Resumo(s):	Public involvement in the governance of epidemiological and public health studies can foster needs-driven research, enhance participants' recruitment, reduce attrition and improve the quality of and ethics in research and surveillance. However, it can also reinforce health inequalities if it fails to ensure public representation across socioeconomic gradients. This study aimed to assess patients' and carers' preferences for involvement in collective health data governance, and its associated factors, to strengthen the evidence base for policy development.
Tipo:	Resumo em ata de conferência
URI:	https://hdl.handle.net/1822/68120
DOI:	10.1093/eurpub/ckaa165.801
ISSN:	1101-1262
e-ISSN:	1464-360X
Versão da editora:	https://academic.oup.com/eurpub/article/30/Supplement_5/ckaa165.801/5914259
Arbitragem científica:	yes
Acesso:	Acesso aberto
Aparece nas coleções:	CECS - Artigos em revistas internacionais / Articles in international journals